I really thought that she wasnt going to have any....
Last weekend Dec 27th, I gave Aurora a peice of chocolate that we had gotten from Christmas time. I had my sister pick it out and asked her to give Aurora one with "Peanuts"... WELL the box must have been flipped the other way, and instead she got one with "Walnuts" which she has never had!
WITHIN 5 minutes Aurora was puking, and hives from HEAD TO TOE!!!! I rushed her to the ER where they gave her 3 different meds to make the reaction stop! It was horrible... She itched so bad!!!
So that Monday we took her to Timberlane Allergy, where she tested positive for being allergic to "Walnuts" and "Pistachio's" GREAT!!!! Which means she now needs to have an Epi pen with us at all times! And it seems like it would be easy to make sure she doesnt have these things, BUT because its tree nuts, they banned her from ALL TREE NUTS! COME ON! The other day I wanted to make some brownies with her... and what do you know, right on the side of the box, "This was manufactured on the same table as tree nuts!" You got to be kidding me! So now I am a freak CHECKING ALL LABELS!
So of course the next day after her ER visit and all the Steriod meds, she looked very off, very seizury! For the first time in 28 days, she was saying "Im going to have a seizure" she said this for days... until 2 days ago, she woke up at 5:30am, and had a seizure! Then she had 6 more, landed herself in the ER, IV Meds, and a crappy day! DAMN DAMN DAMN DAMN!
I wasnt suprised, because it seemed that the HIVES and Steriod meds made her look seizury, and her Pedi came to see her in the ER that day while she was having seizures and said that the Steriod Meds probably played a big part in her Break through seizures.
Her blood work done that day also showed that she wasnt at her level yet for her Depakote. Her level that they want her at should be 90-100, and she was at 61. Soooo, they bumped up her meds! She still looks off... but we are now recounting, and today is day 2 of no seizures, and that in my mind is good! I dont want her to have seizures everyday! So ANY DAY without a seizure in my book is A GREAT DAY!
Sucks to have to update with bad news! But that is why I havent updated, its been a crazy 2 weeks...
We leave for Boston to meet with the new Neuro in 2 days. I am excited to hear another perspective. We love her current Neuro, and do not have any problems with her at all, and think she has really looked out for Aurora... but sometimes other doctors think of something the other didnt, or they might have other suggestions, and at this point... I will take anything we can get to make her better!
In 1 month, it will be 1 year since Aurora was diagnosed with Epilepsy, and she isnt controlled fully! This makes me so sad... I cried in bed the other night thinking, PLEASE GOD give her the strength to make this better, to help her NOT have seizures!!!!!
I pray with this new year that she will get that!!!!!
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