So we are home from our trip to Boston with Aurora.... I AM BEAT BEAT BEAT! Phew, it is good to be home.
Her appointment was GREAT! I transferred her care into the new doctors hands, Dr. Takeoka. He was an amazing doctor, very smart, and kind, and had a plan in place :) He was very confident that he could treat Aurora and get her control! I liked the idea of her seeing him because he is an Epilepsy Specialist, he eats sleeps and breaths Epilepsy... and that is where she needs to be.
He did say that because she is in the category of being hard to treat, that being in Boston was a great place for her, and that she would be in great hands!
We will be going back Jan 21st for a 5 night Video EEG, where they will actually wean her off her meds, and then want a seizure to be captured on the EEG. Then they will put her back on the meds, we will be there about 1 week!
He said that doing this is important to see EXACTLY where the seizures are taking place when they happen... he said with this information he would be able to narrow down meds that will work for her specific seizures and location of the brain!
To me, this is a good next step... I dont want to play guessing games with meds, and have her be a guinea pig... so this is good!
So, we are back home, we are all beat!!!!
For now, she is on day 6 of no seizures, and all is well except for these colds we caught being there... BLAH!
I have my doc appointment tommorow and then my ultrasound in 1 week to find out the gender of the baby!!! VERY exciting.. its crazy that I am almost 20 weeks... its flying by already!
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