Back in the Hospital with Miss Aurora.

Well Aurora went almost 5 weeks without seizures! And yesterday afternoon she had 1 seizure, and then went 1 hour, and had another... and then went into clusters. The visiting nurse was there and witnessed what her seizures looked like.

Of course I had to call 911, and she took the ambulance down to the hospital where they gave her an IV, and gave her meds to stop puking from the emergency meds they were going to give her.

This time it felt more organized... maybe they are use to her coming in..? This time they KNEW what to do... not asking me A MILLION questions! So that was nice that they finally had the clue and worked right away to get everything done to help her!

They added a second seizure med in. Tegrotal. She will take it 3 times a day, and will also still take her Keppra 2 times a day.

She will need to get regular blood check ups to make sure this new med isnt affecting her white blood count, or her liver! Scares the shit out of me... but they said AS LONG as she is on a safe level than it shouldnt affect her blood count or liver at all!

I AM PRAYING that these 2 drugs will be the combo that will give her seizure control! I keep telling myself that they said from the start that it will take trying different meds, and different doses... EVERYONE is not the same, and some drugs that work for others, MAY not work for another person!

I have heard that Keppra works sometimes ALONE for some people with CERTAIN seizures, but its usually an ADD ON. So maybe with this new drug the 2 will work like they should!

It breaks my heart to watch my daughter go through this! When the ambulance was coming she said "Mommy, I dont want to have another seizure!" I didnt know what to say. I just picked her up and hugged her and told her Mommy was going to try EVERYTHING in her power to get her better!!!! Inside I was breaking!

Please pray for my angel! She doesnt deserve this. No child does! Pray that these drugs will stop the seizures, and that she can continue to lead a normal life... No more Ambulance rides, no more getting stab for an IV, no more med increases, or switches!

We are in Middlebury this time, which is nice. Usually they ship us to Fletcher, but they decided to keep us here. Its been calm and quiet... private room! And my kids have been able to sleep! Which is EXACTLY what Aurora needs, a good night sleep! We might be here another night.... so that she can be monitored!

I will update again.