She had a STATUS seizure (which is when a seizure doesnt stop on its own) when Wesley was 3 weeks old. This was really scarey. I hadnt researched or learned about Epilepsy yet, so I didnt know what a Status was, and I didnt know how it was treated. All I knew was things I had heard, such as if a seizure lasted longer than 25 minutes, there could be brain damage. Aurora's seizure went on for 35 minutes, so of course you can imagine I was FRIGHTENED of this possibilty!
That night, as she slept from the emergency meds they gave her, I waited and waited for her to wake up. I was praying silently in my head that she would wake up look at me and say something! Confirm my fear that she was injured from this seizure. Of course my daughter is a solider, and did just that. She woke up, looked at me, and said, "I want a popscile mommy!" I thank god to this day!
They put her on Keppra 2 x a day... and it seemed to keep the seizures way for 4 months. July 4th, she had a seizure while playing on the trampoline with some friends.
And then the weekend of her birthday (which had to be canceled) she had cluster seizures. She was rushed to the ER, where they gave her ATIVAN (which is an emergency med) she in return stopped seizing, but had a bad reaction to the meds, which made her hallucinate, scream, and then throw up... She will not be getting that again!
After this episode her meds got raised in the evening, and stayed the same at night. She went 2 weeks, and then this past weekend, she again went into clusters. I think that because she was getting sick, and then Wesley kept her up all night, her threshold was low... Her meds got raised again this time during the day.
She has adjusted fine. And is back to herself. I am currently waiting to hear back from the Neuro in regards to a new MRI, and a 48 EEG.
On a more positive note:
Here are some pics from when she got home from the hospital where my father was waiting with a BIG birthday suprise since her party had been canceled!
No comments:
Post a Comment