15 DAYS!!!!!!!!!!!!!!!!!!!!!!!

THATS RIGHT! Aurora is on DAY 15! I am such a freak. I was saying it was less days, and then realized the other day that her Depakote Prescription was almost out and thought "Wait, that was for a 2 week script!" AND REALIZED! MISS AURORA IS ON DAY 15 today for NO SEIZURES!
We are going to celebrate, and do something fun... and then have a ice cream sundae party tonight! I will take pics and post!

I had posted the days earlier in my posts, and they were wrong... she actually was on more days!! DUH!

Hopefully with no Xopenex, no Tegretol, and NO Topomax, things will calm down for her. I PRAY that my baby girl can be home for Christmas, and NOT in a hospital!!! So please pray that for her... she deserves a break!

MRI Update, Interesting DRIVE!

What a horrible timing for a winter snow storm than the morning of Aurora's MRI. We left at 6:30 and it was snowing so hard in Ripton, I couldnt even come to a stop at a stop sign on our road without SLIDDING! Oh boy... I should have known since its A MOUNTAIN and all down hill. I slide the whole way down, and then offically lost control right at the bottom near the bridge and landed in the ditch... about 4 feet from the bridge. SCARED THE CRAP right out of me. LUCKILY Kelly had been following me in his truck, and pulled me out. Poor Kel couldnt leave me out of his sight the whole drive he was so freaked about me and the kids going off the road! I had my sister Lynzee with me too....

The MRI went ok. They had to give Aurora a Med before hand to calm her down. She was sooooo freaked out about even having to go to the hospital I couldnt get her to walk into the room! So they gave her the meds outside in the hall, and pulled her in a wagon until it messed her up so bad she acted drunk...

The MRI took about 1 1/2 hours. We had been running so late so I got there around 9:30 and she got into her MRI around 11:15...

I talked to Nancy (Neuro Nurse) and she gave me a brief results... NO tumors, or anything NEW...

She said that the report said "UNCHANGED" from last MRI. Which worries me because her last MRI she was 1 years old, and there was still blood in her brain from the bleed... so she said she wasnt sure if that meant the blood was "STILL" there or what??? SO we will wait to hear from the Neurologist.

Besides that I felt a 10000000 POUNDS lifted off my shoulder by knowing that she didnt have something going on NEW in her brain! SO THANK YOU GOD!!!!

I prayed so hard the night before... and obviously God was listening... he must be listening this whole time because I didnt ask for him to change my daughters health because I know he cant... but to guide us, keep us safe! And that is what happened!!!

ANYWAYS. We are home. I have a Prenatal appointment, and then our butts are home for the big storm coming in Friday!

MRI this morning

Its 1am and I cant sleep.. we have to leave here in 4 hours to get Aurora to Fletcher Allen by 6:45 for registration and then 7am for her MRI... they have to give her an IV and then put her to sleep!

I HATE IT... Its horrible when they inject the stuff and she is talking and then BAM she is out!!!! Kills me....

Anyways. I will keep everyone posted when we get home. Keep my Angel Bug in your prayers!

Update.

Aurora is on day 7 of no seizures... This is good!
Her MRI is tommorow... So please keep her in your prayers! I hate having them put her to sleep for anything! Its scarey... So hopefully all will go well with that, and the MRI will show nothing major. I know they really want to concentrate on her scar and the area where the bleed was, to make sure those parts of the brain are not changed. Her last MRI was a little over 2 years ago, and at that time she still had blood in her brain... so this will be a clean MRI to show all the scars and where they are, and how large.

Anyways! Fingers crossed for more good days :)

Epilepsy Walk Team

I have had a couple people contact me and want to join our walking team in DC. This is great.....

If you want to be part of the team, leave a comment here, or email me! Thanks!

Epilepsy Walk

Kelly and I have decided that we are going to do the Epilepsy Walk in Washington DC March 2009.

I will put a post here on how to make a donation, or join or team to walk!!!!! Either there in DC or Virtually!

Lets raise money to help find better medicine, and learn how to treat Epilepsy... for Aurora and every family who deals with this!

I couldnt resist...

Aurora was watching a movie, and Tank fell asleep like this. Aurora was zoned right out.. LOL!
She gave Tank this stuffed animal, he has slept with it each time.. SO CUTE!!!!!

I told you, I just cant resist!