Sign the Petition for Epilepsy

Show Your Commitment. Sign the Petition!

The Epilepsy Foundation is leading the fight to increase funding for research and programs, stop discrimination and improve access to care.In 2009, a new President, 535 members of Congress and nearly 10,000 state legislators will take office. By signing our petition, you can help us persuade them to support policies that improve the lives of the three million American families affected by epilepsy.

More than 3 million Americans have epilepsy (seizures) and 200,000 new cases are diagnosed yearly. For most, there is no cure and many with epilepsy face discrimination and difficulty accessing care.I strongly urge policymakers to support efforts that end discrimination, improve access to care programs, and increase funding for epilepsy research and programs.

Click to the Right, and it will take you to a page to sign the petition!

Do it for Aurora, and everyone else who has Epilepsy.

An ok night, and a better day.

So last night went OK. Wesley woke up throughout the whole night, and I had both kids up at 4am.. Wes needed his nebulizer, and Aurora Motrin!

Aurora has the hand foot and mouth way worse than Wes... hers is actually spreading to her lips! Hopefully this will be the extent to it, and it doesnt get worse!!!

Today has been good so far, I have had time to clean out and get rid of half there toys in the playroom, and I conquered the dishes! I wont complain!!!

TOO CUTE!

These were TOO CUTE not to share! This was from the summer at my friend Danielle's house.. they had just got this puppy. The pup was already asleep on the couch, and then Wes fell asleep... and SLOWLY the pup creeped up next to Wes, until it was SNUGGLED with him! It was the cutest thing I have ever seen! I had to share!!

I am offically a Board Of Director.........

I wanted to share my great news! I got a phone call a couple weeks ago from Audrey who works for the Vermont Epilepsy Foundation. Her and I have been in touch since Aurora was offically diagnosed with E in Feb...

We have attended support groups, and meetings. The Epilepsy Foundation did the BIG CHILL last year, and I helped them raise money by putting them in touch with the Vermont National Country Club, who did a generous donation, and also set them up to do fund raising golf tournements! YAY!

Because of my efforts, Audrey called me and said that they were looking for someone to become a board of director for the Epilepsy Foundation, and they would love for me to be ont here team! I had to write a cover letter, and send my resume... The hiring process consists of my resume being reviewed by the board (presidents, board members and directors, ect)...

They came to an agreement that I WAS A YES!!!!!

So November 9th there is a huge banquet in Burlington at the Hilton, and I will be offically announced as a new board of directors!

I am so excited! I think that being more involved with the Epilepsy Foundation will make me much more comfortable in understanding Aurora's E.

They want to train me to become what is called a "Hope Mentor" which would be someone who can talk to families in need of just a ear, or shoulder to cry on!

I got a letter from Audrey today handing me my first project, which will be to write there annual letter! And then to help with fundraising for a Bowling Tournament that is coming up, THAT AURORA will actually be playing in, HEHE!

So I wanted to shed some good news for everyone who I havent told yet! I feel honored to be part of the fundraising process for Epilepsy. This of course touches home, and I will do ANYTHING that benefits Aurora!!!!!

Here is a fun photo from this summer of Aurora, Daddy and Layla on the four-wheeler!

So far not a peep!

Both the kids are sleeping soundly! KNOCK ON WOOD! I hope they just get a good night rest! Aurora couldnt eat dinner her throat hurt too bad tonight, and I have a MASSIVE headache from listening to Wesley scream for the past 48 hours! UGH! But at last, SOME SILENCE!

Here are some Fall Fun photo's I took last week of the kids. Gotta love there smiles... I looked at these and thought, this is what makes life so special, even through all the hecticness, sickness, ER visits, Ambulance rides, Medications.... THIS RIGHT here, my 2 children are my life! And what make me breath everyday!

Like I said it never ends!

Well Wesley screamed all night, and day, so when I brought him into the docs today to get rechecked for his bronchitis, they said he had Hand Foot and Mouth... NO WONDER he had been crying!

And of course Aurora has it too! She has been sicker than a dog today! UGH, enough is enough, cant we seriously catch a damn break!!!!!!!!!!!!!

My Family

My beautiful and amazing mother!! She is such a strong woman! She inspires me everyday with how she handles alot of BS and yet keeps a smile on her face! I love her with all my heart, she will always be my bestfriend! My Daddy! Yup I am sure you are thinking that this is an odd picture, most pictures are odd! He HATES having his picture taken!!! Unless its an occasion and you catch him off guard, (See previous post about Aurora's dollhouse!)... so this is as good as it usually gets! Or if you ask him please you will get this! So I think the first is better! LOL! My mother and father are young, and I appriciate that, we have always been able to relate.... My parents are fun! And I love them! My sister Amber who will be 19 in a couple weeks! Her and I are complete opposite, bicker at times, dont see eye to eye... but I love her and have had some fun times!!!! My Sister Jessica. She is 17, and an amazing mother to her daughter Zoey! She had her young, yet managed to keep herself in school and will be graduating this year! YAY!!!!!!!!!!!! She has motivation and determination... she's a strong woman!
Lil Miss Zoey... She is cute as a button! My FIRST neice!!!My Sister Lynzee. She is 16, and a rebel! I swear my parents thought I was a handful as a teen, NOPE, Lynzee tops anything I did! THANKS LYNZ!!! LOL... but if you look past her teenage rebelness, she is a sweet, caring, kind hearted person! Aurora loves her Linney, and they have a very special bond together! Lynzee will blossom to be an amazing woman one day!
My other 2 sisters, Lindsay and Nikki! I havent kept in good contact with them, but just reconnected this year! I am so glad I did, it was a missing peice of my life that I am so glad to have regained!!!! I hope to make memories over the years with these guys!

So all in all, there is my family! Thought it would be nice to show you who is importnant in our lives and in my childrens!